Dr. Aida Abaz Quka
Neurology
The following is an actual conversation between an iCliniq user and a doctor that has been reviewed and published as a Premium Q&A.
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Patient's Query
Hi doctor,
My son had ETV two years ago, starting with hydrocephalus and having a rosette-forming glioneuronal tumor. He recently had a CT scan which showed signs of hydrocephalus again, and then he had an MRI, which has come back clear, but I am confused as before his surgery, he would fall, and he would not break his fall by putting out his hands, he would be sick in the car. This all stopped after the ETV but has recently come back, and terrible mood swings and his memory has declined. He is seven years old and can no longer do his ABCs or remember the days of the week. Please help.
Hello,Welcome to icliniq.com.
His symptoms (the cognitive decline) suggest hydrocephalus, which could be related to ETS (endoscopic thoracic sympathectomy) blockage, which is a common complication of this device. A new surgery may be needed to put a new ETV (endoscopic third ventriculostomy) in such a case. The cognitive decline is usually reversible as soon as the ETV functions again. As the MRI (magnetic resonance imaging) is normal, there is no reason to panic about the tumor as it is not a regrowing tumor. I hope you will find this information helpful. I remain at your disposal in case of further questions whenever you need me.
Kind regards.
Patient's Query
Hi doctor,
Thank you so much for your reply.
The neurosurgeon has said the MRI is clear, so I assumed he would look at the instrument and is not going to see him; this is what his secretary has summarised for me. I told her everything, and she said she would get back to me if needed. May I ask for some advice on what I do as feeling quite lost and worried as he has rapidly declined?
Thank you.
Hello,
Welcome back to icliniq.com.
I recommend consulting with an infant psychiatrist to help improve his situation. If there is no sign of hydrocephalus, a psychological issue should be considered. I also recommend performing an EEG (electroencephalogram) to exclude possible subclinical seizures that may interfere with his learning abilities. Please let me know which anti-epilepsy drug is he taking? Levetiracetam may cause mood changes, while phenobarbital may lead to memory problems. It is also advisable to check thyroid hormone levels and vitamin D plasma levels for possible deficiency. It would help if you discussed with your doctor the above issues. I remain at your disposal in case of further questions whenever you need me.
I wish you all the best.
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Neurology
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