Thank you doctor,
You seem like a very knowledgeable and caring doctor. I am having a hard time lately. I feel like maybe I can finally accept this as my word now that I heard it from a rheumatologist’s perspective. Because of my bad asthma, my doctor ordered a high resolution CT scan to check fibrosis. He also ordered an echocardiogram because I get a lot of chest pain. I was diagnosed with costochondritis and I believe that goes along with scleroderma and autoimmune disease. I have a lot of trouble with cardio exercise, plus I have had abnormal EKGs before and Holter monitor that came back really tachycardiac. I guess the echocardiogram was normal. I had a 24 hour urine done a few months ago and I did not hear back, so, I guess it was normal. My liver is good too. I have frequent heartburn even though I take 300 mg of Zantec daily, bloating, some random sharp stomach pains, constipation and hemorrhoids. I also always have a very hard perennial area as a rock, feels tight and uncomfortable a lot. I am not sure if that can occur with scleroderma. Also, I have vaginal swelling too. My chest in the back and ribs are always stiff. Rheumatologist in my town previously thought that I had psoriatic arthritis and arthritis in the ribs, because of high uric acid, inflammation in joints and nail pitting. But, he did not do many tests.
Here, my doctor did a lot of tests, I hope something gives me insight about my stiff ribs and chest. I call it as an elastic band as it feels like there is a tight band around my upper back on the sides. My husband cannot even touch my ribs or the back part of my chest or upper back as it is so tender. I also cough up a lot of thick mucus. Does the focal dermal sclerosis strongly indicate scleroderma in rheumatology? Thank you so much for the help and advice. I am a pretty happy person, I have a lot of support, so I rarely get depressed. But, I get frustrated with all the unknowns and the constant symptoms. Sometimes, it is hard to communicate with doctors. Thanks for the tip about the dermatologist, I will request it from my rheumatologist when I get home. I also visit an allergy specialist once in a few months.
I am scared about the Methotrexate. I used to be on Prednisone almost all the time. I am only taking three pills a week. My muscles in my forearm get very hard like a rock, feel very tight and uncomfortable. Can that be a symptom of scleroderma? I attached some photos, the first shows the thick skin on the back of my hand and the other shows my hands and feet when it is colder in the room temperature (not freezing), I cannot really tell if I have Raynaud's, but my feet go cold and white and three pairs of socks cannot warm them. There is one photo of how purplish my toes and the nails turn when they start to warm, I do not know whether that is Raynaud's. I am very grateful for your time. Thank you.