How can my wife stay independent with NMOSD at 62?

Question

Hello doctor,

My wife was diagnosed with NMOSD about 4 years ago, and things have gotten harder this past year. She had two relapses nd her EDSS score went up to 6.0, which her neurologist said means she needs a walking aid most of the time now.

She uses a cane, but some days it is not enough, and she gets really depressed about the things she can't do anymore. She is 62, and before all this, she was incredibly active, always gardening and volunteering.

How does a 62-year-old with NMOSD manage daily life with significant mobility limitations without losing her sense of who she is?

Kindly help.

Answer 1

Hello,

Welcome to icliniq.com.

I read your query and can understand your concern.

I am so sorry that your wife and your family are going through this. Understandably, she is grieving the loss of abilities that were such an important part of her life, and many people with NMOSD (neuromyelitis optica spectrum disorder) experience these feelings after relapses that affect their mobility.

An EDSS (expanded disability status score) score of 6.0 means that walking has become more challenging, but it does not mean she has lost her identity or that she cannot continue to live a meaningful and fulfilling life. Working closely with her neurologist and a rehabilitation team that includes physical and occupational therapists can help maximize her mobility, improve safety, and identify walking aids or other assistive devices that best match her needs.

It is also important to focus on activities she can still enjoy, such as adapting gardening with raised beds or seated tools, finding volunteer opportunities that can be done from home or with less physical demand, and staying socially connected.

Depression is quite prevalent among individuals suffering from chronic neurological disorders and must not be taken as something that they must merely put up with. It would be helpful if you could encourage her to talk about her moods with her medical professionals, as counselling and even medication can go a long way.

Continued treatment to reduce the risk of future NMOSD relapses is also essential because preventing additional attacks is the best way to preserve function. With the right medical care, rehabilitation, emotional support, and practical adaptations, many people are able to rebuild a strong sense of purpose and maintain a rewarding quality of life despite significant mobility challenges.

I hope this helps.

Thank you and take care.

Regards.