How to treat hemophilia A in children?

Question

Hello doctor,

I am really worried about my son. He is seven years old and has severe hemophilia A. Lately, he has been asking to play soccer with his friends, but I am terrified he will get hurt. I have a few questions.

How can I balance letting him be a normal kid with keeping him safe?
Are there any sports that are safer for him?
Also, he is starting to notice he is different from other kids and asks why he needs injections.
How can I explain his condition in a way he will understand without scaring him?
Lastly, his teacher seems anxious about having him in class. What information should I provide to the school to ensure they can care for him properly?

Kindly provide your guidance.

Answer 1

Hello,

Welcome to icliniq.com.

I read your query and understood your concern.

Caring for a child with hemophilia A can be challenging, and you are doing an admirable job. Your son is capable of understanding, so try explaining his condition in simple terms. He needs to realize that having a condition does not make him different. It is just something he needs treatment for.

It is essential to avoid taboos, instead, embrace the situation and empower him to live confidently. Explain to him what activities are safe and which ones should be avoided, like soccer or any other high-contact sports. Encourage him to play safer games such as table tennis, chess, indoor games, swimming, or even cricket, but steer clear of more dangerous sports like baseball, hockey, or tennis.

It is also important for his teacher to be informed. Make sure she understands that your son is just like other children, but in the event of bleeding, he should be sent home or to the hospital.

Try not to be overly cautious with him, as it may make him anxious. Keep an eye on him, but allow him the space to manage things on his own. If he is not getting hurt often, that is a good sign. Also, ensure he has good vision to help prevent accidents.

Remember, you can not avoid every minor injury. It is a part of life. May God bless your son, and may he stay safe. You can talk to him in detail without focusing on the negatives. Let him know that many people around the world live with this condition and lead normal lives. They are heroes in their own way.

I hope this has helped you.

Kindly follow up if you have more doubts.

Thank you.