How to manage hemophilia?

Question

Hello doctor,

My nephew is 15 years old and was born with hemophilia. We have always been careful about him getting hurt, but recently he fell while playing, and his knee swelled up badly. The doctor said it was because of internal bleeding. How serious is this? Will he always have to avoid sports and physical activities? He feels very left out when his friends play outside, but we are scared of him getting hurt again. Is there any way to make his body clot blood like a normal person? My sister, his mom, is worried he will have to get injections forever. Are there any other treatments available? His school also asked us for a medical certificate. What should we write on it? What precautions should he take during his teenage years? Will he ever live a normal life?

Kindly help.

Thank you.

Answer 1

Hello,

Welcome to icliniq.com.

I read your query and can understand your concern.

Hemophilia is life lifelong fight in children. More care is needed after adulthood. Sometimes factor levels get better. I need to know what type of hemophilia he has. Whether severe, mild or moderate? That is the important thing to keep in mind.

Usually, injections are needed.
New treatments are coming.
Some medicines are under research.
General therapy is also under trial but expensive.

Hopefully, tomorrow will be better. I hope he gets better with time and you need to be helpful and courageous.

Take care.

Let me know if I can assist you further.

Thank you.