How do I cope as my 53-year-old husband's caregiver?

Question

Hello doctor,

I really do not know who else to ask about this. My husband was diagnosed with epilepsy 3 years ago, and he is 53 now. His last EEG showed abnormal activity in the left temporal lobe, and he is on medication, but he still had 2 seizures last month. Every time it happens, I am terrified. I do not sleep properly anymore, and I feel like I am always on high alert, watching him.

How do partners cope when their loved one has epilepsy at age 53?
Is there any support or counseling specifically for caregivers in this situation, because I am really burning out?

Please help.

Answer 1

Hello,

Welcome to icliniq.com.

Yes, it is very difficult to manage caring for patients who are suffering from epilepsy, as it can be a terrifying experience, and caregivers can experience burnout. However, there are specific strategies that you can use while continuing to provide care.

First of all, epilepsy is a manageable condition. If he takes the medicines on a regular basis, he will surely improve and can live a normal life. Secondly, medicines do not continue for the long term. It takes some time to find the right combination and dose, and then everything goes smoothly.

You are experiencing burnout, and it is common among caregivers. You should know your needs, and you have every right to talk about them. For instance, adequate sleep, appetite, and sexual needs. Talk about them with your partner. Similarly, take help from your family or hire a caregiver for some time so that you may get proper sleep and rest.

Rest is very important to manage burnout. Talk with someone whom you trust and share your feelings with them. Talk therapy also works. Moreover, specific epilepsy groups are available on social media. You can join them and share your feelings.

I hope you are satisfied with my answer. For further queries, you can consult me at iCliniq.

Thank you.