Patient's Query
Hello doctor,
I started having seizures later in life, and most of them are focal seizures, but I have had one or two generalized tonic-clonic seizures, which were terrifying. Medications have helped to some extent, but they have not completely controlled them.
Are focal seizures less dangerous than generalized tonic-clonic seizures at age 50?
In epilepsy, is the risk of injury really lower with focal seizures, or is it still significant?
Do focal seizures also increase the risk of SUDEP?
I do not want to downplay these seizures and end up putting myself at risk. The constant uncertainty makes me feel as though I cannot fully trust my own body. The unpredictability is making me afraid to be alone.
Kindly help.
Hello,
Welcome to icliniq.com.
I read your query and understood your concern.
Focal seizures are usually less dangerous than generalized tonic-clonic seizures, but they are still serious and should not be ignored. Generalized tonic-clonic seizures carry a higher risk of major injuries, breathing difficulties, and accidents because of the loss of consciousness and full-body convulsions.
However, focal seizures can still lead to falls, confusion, injuries, accidents, or sometimes progress into generalized tonic-clonic seizures.
People with focal epilepsy can still have a risk of SUDEP (sudden unexpected death in epilepsy), especially if seizures are not fully controlled or if generalized tonic-clonic seizures also occur. The strongest known risk factor for SUDEP is ongoing uncontrolled generalized tonic-clonic seizures, which is why achieving good seizure control is very important.
As your medications are only partially effective, it would be reasonable to discuss treatment adjustments with your neurologist. This may include changing medications, adjusting doses, or seeking evaluation from an epilepsy specialist.
Safety measures are also important, including:
Taking medications consistently.
Getting adequate sleep.
Exercising caution with activities such as driving, swimming, bathing alone, or working at heights until your seizures are better controlled.
The fear and uncertainty you are experiencing are very common among people living with epilepsy, particularly when seizures are unpredictable. Improving seizure control and having a clear safety plan can help you feel safer and more confident over time. Kindly continue regular follow-up with your neurologist.
I hope you are satisfied with my answer. For further queries, you can consult me at iCliniq.
Thank you.
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Answered byDr. Basuki Nath Bhagat
Medically reviewed byiCliniq medical review team
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