Before 7 years, I was affected by chronic HP. From that time, I am in oxygen therapy and steroids 4 mg. My doctor told to taper them and stop so as per his advice I slowly tapered the dose of steroids and stopped it finally. When I stopped it, I cannot able to move or walk and also my saturation at rest falls to 75% without oxygen concentrator. But, it rises to 99% on oxygen concentrator. If I am on steroids, then my oxygen on resting was 90% and above and I am able to walk freely. I failed so many times when I tried to stop steroids. What is the relation between steroid and oxygen saturation? Why am I not able to walk without steroids? When I asked about this to my doctor, he did not believe me and said it was the withdrawal symptom of steroid. I know adrenal insufficiency problem, but what is the reason for lowering saturation and unable to walk. Please explain.
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Thank you doctor,
My lung biopsy stated that I had only ILD and not idiopathic lung fibrosis. If I start steroid more than 12 mg, then my oxygen level at rest is 90 without a concentrator. It gets low only on lowering steroids. Why?
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