I am 29. How do I manage breathing difficulty due to lupus?

Hello doctor,

I am a 29-year-old. I have a past medical history of lupus, Raynaud's phenomenon, and migraines. Since being diagnosed with lupus, I have been having difficulty breathing, and it was found that I have tachycardia, which the doctor is treating with Metoprolol.

Metoprolol helps with shortness of breath when I am at rest, but once I start doing things like brushing my teeth or getting dressed, I feel out of breath and sometimes become sweaty the more I move around. I have been extremely tired, and it has been getting increasingly worse over the months.

I have done several imaging and laboratory tests, and the doctors do not have an answer to the probable reason behind this. I also have the lupus anticoagulant. I am worried because I keep getting worse, along with breathing issues.

I am holding a weight in my abdominal area despite eating healthy and exercising within my limits. My toes turn blueish purple a lot more than usual. I used to run miles for exercise, but since being diagnosed with lupus and developing breathing difficulty, I have become out of breath, walking less than 100 feet.

I have a right cardiac catheterization scheduled for next month, but I am wondering if anything can be determined from my laboratory tests and images right now before the catheterization.

Please help.

Thank you.