Common "Ehlers-danlos Syndrome" queries answered by top doctors | iCliniq

Ehlers-danlos Syndrome

Ehlers-danlos syndrome is a group of inherited disorders that affects the connective tissue of the skin, joints, and blood vessels. The major blood vessels may rupture easily, and skin is often prone to injury. In this condition, the joints will be over flexible, and chances of dislocation are high.

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I have Ehlers Danlos syndrome and dysautonomia. Please help.

Query: Hello doctor,I have Ehlers Danlos and dysautonomia. Six months ago, they found what they believed was an outpouching in my brain in an MRI after I had a migraine for two days. They did a follow-up five months later, (and therefore the previous MRI was last month) and found the same thing. (My report...  Read Full »


Dr. Neeraj Nagaich

Answer: Hi, Welcome to Icliniq.com. I understand your concern. Try to avoid any trauma to your head. I suggest you eat more fruits and vegetables. I hope this information will help you. Please revert in case of further queries. Thank you.  Read Full »

Why am I suffering from worsening fatigue despite taking treatment for Vitamin D deficiency?

Query: Hello doctor, I have been suffering from worsening fatigue for the past many years. I have been diagnosed with hEDS, POTS, and MCAS and have had many laboratory tests. My vitamin D deficiency is being worked on and has been treated in the past with no change in fatigue. I am attaching my blood repor...  Read Full »


Dr. Shubadeep Debabrata Sinha

Answer: Hello, Welcome to icliniq.com. Thanks for your query. You seem to have disconnected syndromes including hypermobility type Ehlrers-Danlos syndrome (hEDS), Postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS). hEDS has a normal life expectancy. However, th...  Read Full »

My eyes get stuck on awakening. Why?

Query: Hi doctor, I am wondering about my eye condition. I have had Symblepharon and I may have Ehlers-Danlos Syndrome (awaiting diagnosis). I have general tissue fragility. My skin will stretch more than normal, hypermobility of my joints due to fragile stretchy tendons and ligaments that provide poor sup...  Read Full »


Dr. Shikha Gupta

Answer: Hello, Welcome to icliniq.com. I have read all of your complaints. Regarding Ehler-Danlos syndrome (loose joints - rubber man syndrome) may be possible and that would be confirmed only on your reports. Based on the photo you have sent (attachment removed to protect patient identity), it does not s...  Read Full »

I have congenitally missing teeth and teeth with cavities that tend to break. Please help.

Query: Hi doctor, I am a female. My mother and I have the same dental issues. My teeth have cavities, and they break. Other medical issues are acid reflux, fear of vomiting, anxiety at the dentist (I usually get prescribed a particular Benzodiazepine when I go), PTSD (Post-traumatic stress disorder) is unr...  Read Full »


Dr. Muzaffer Hussain Parray

Answer: Hi, Welcome to icliniq.com. I have gone through your question, and I can understand your concern. Dental pain is usually non-localized because the brain's pain center can not identify the same, so the pain looks like the one you feel. Now coming to your query, you need to answer certain question...  Read Full »

My mother has Ehlers-Danlos syndrome. Please help.

Query: Hello doctor, My mother has Ehlers-Danlos syndrome, and her teeth have become loose and are falling one by one. The dentist has recommended her to get her teeth removed and get artificial teeth. He suggested implants and said her bone height and gum conditions are good for implants, but I fear she m...  Read Full »


Dr. Naveen Thomas

Answer: Hello, Welcome to icliniq.com. I do not think implants are a good idea. When natural teeth are falling off on their own due to gum problems, then the implant will definitely fail. So it would be best if she only have removable complete dentures. Thank you.   Read Full »

Noncoronary sinus of valsalva is prominent in CT scan. What does it mean?

Query: Hi doctor, I have had a CT scan with contrast and they found this: The noncoronary sinus of valsalva is prominent. At this level, in the coronal plane, the aortic root measures 4.0 cm in diameter. What does this mean and should I do anything about it? I am 37 years old male, exercise a lot. Resting...  Read Full »


Dr. Sagar Ramesh Makode

Answer: Hello, Welcome to icliniq.com. Your aortic root is mildly dilated. If you do not have any other systemic diseases like any diagnosed syndrome like Marfans or Ehler Danlos etc., then this needs no treatment at present, but just observation. At this borderline dimensions, we just observe the patients ...  Read Full »

Can kidney stone and EDS cause loss of appetite, nausea and other GI symptoms?

Query: Hi doctor, I am an 18-year-old girl. I am experiencing some strange GI symptoms. I am chronically ill and I have postural orthostatic tachycardia syndrome, mast cell activation syndrome, Ehler,s Danlos syndrome, and complex regional pain syndrome. About two months ago, I was in the ER with severe ab...  Read Full »


Dr. Ajeet Kumar

Answer: Hello, Welcome to icliniq.com. I can understand that it must be terrible for you to have these problems with their consequences. I might give you some suggestions based on my knowledge about the conditions you mention. EDS (Ehler's Danlose syndrome) is a problem with skeletal muscles that can acc...  Read Full »

I end up diagnosed with ED syndrome for joint and back pain. Please help.

Query: Hello doctor,A geneticist made a statement that I might have a mild form of hypermobility EDS. So I went to a rheumy who told me my Brighton score was 9/9 and that he knows I have hypermobility syndrome and would have to see a geneticist to see about the possibility of a mild form of EDS. It is like...  Read Full »


Dr. Anshul Varshney

Answer: Hi, Welcome to icliniq.com. Joint hypermobility can be due to Ehlers-Danlos syndrome, which is characterized by weakness of the connective tissues of the body. It is also seen in Down syndrome and in people with Marfan's syndrome. I do not find a picture of Marfan syndrome seeing your images. (att...  Read Full »

Can EDS cause spider veins?

Query: Hi doctor, I am a 32 year old female, who weighs 150 lbs and 5.9 feet tall. I have been experiencing a burning, stinging, or intensely sharp pain in different areas of my body, which always seems to be coming from a vein or artery on my neck where carotid is, in the leg, foot, arm, and temple. I ha...  Read Full »


Dr. Anshul Varshney

Answer: Hi, Welcome to icliniq.com. People suffering from EDS (Ehlers-Danlos syndrome) tend to develop neuropathy like symptoms, that is tingling sensations. This could be a result of neuropathy or just somatic in nature. Important here is that, if all your parameters and blood work, ultrasound a...  Read Full »

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