Patient's Query
Hello doctor,
I have had a myriad of symptoms because of this, but the main consistent one would be that I cannot hold any amount of urine, whether I have the urge to go or not, without upper flank pain, and recently combined with lower left back pain. When it gets really bad, I notice I tend to slur my words more often and have a tingly tongue.
Ultrasound shows echoes consistent with a few mm (millimeters) of calcium stone, which should be nothing.
Blood and urine tests have always been negative, except for small spikes in white blood cells when I first got these symptoms.
I have taken five-day antibiotics several times, with symptoms improving by the end of them, only for the symptoms to come back after a week slowly.
Last year, I came up with something similar, and I had the same issue of doctors not believing me. I had recovered back to full health to the point where I could eat and drink anything, including alcohol, without a flare-up of whatever this was. I only recovered within a few months because I lived at my parent's house and I could afford to work a few hours.
I took three separate antibiotics last March, May, and September. Ciprofloxacin 250 mg (milligrams), two tablets daily for five days. Cefixime 400 mg, one tablet daily for seven days. Sulfatrim DS 800 or 160 mg, one tablet every five days.
Kindly help.
Hello,
Welcome to icliniq.com.
I read your query and can understand your concern.
I would like to have a copy of the ultrasound and urine reports, if possible.
I would like to know the following:
1. How much is your daily fluid intake, approximately?
2. How often do you take tea, coffee, cola, or alcohol?
3. How frequently do you go to pass urine during the day?
4. How frequently do you wake up at night to pass urine?
5. Do you have constipation?
6. Did your urine tests confirm a urine infection?
In addition, you can do the following:
1. Take about 0.53 to 0.66 US gallon of water every day, not more.
2. Avoid excess tea, coffee, and carbonated drinks.
3. Take a tablet of Mirabegron (a beta-3 adrenoceptor agonist) 25 mg (milligrams) once a day initially, and monitor blood pressure every week. If needed, the dose can be increased.
I suggest you consult your specialist doctor, discuss with him or her, and take the medicines with their consent.
I hope this information will help you.
Thank you.
Patient's Query
Hello doctor,
Thank you for your suggestions.
I drink on average 20 to 40 fluid ounces of water per day, sometimes 68 on my days off (one reusable 34-ounce bottle of lemon water and one regular bottle of water through the course of a day). I want to get better and am doing everything I can to keep the symptoms down, but they never go away fully. I cannot drink alcohol, coffee, or soda anymore because if I do, these symptoms get a lot worse with an even more ominous feeling of malaise and fatigue, which feels like I have a reinfection.
It is incredibly frustrating because I never had a proper fever, but instead, after reintroducing sodas into my diet last September, I had severely debilitating fatigue and malaise until I somehow managed to get a doctor to get me a seven-day prescription of Cefixime of 400 mg.
The last time I went to a hospital outside my city was last december, so there is no record of this, but I tested negative for diabetes, negative for anything to do with my stool sample, and negative for my urine culture.
I do not know what to do. I only know that urinating makes the pain go away slightly, but it never fully goes away anymore. I remember what it was like when holding in urine for 30 seconds was not painful, and I felt like I was going crazy because I could not get my doctors to refer me to a urologist. After all, obviously, on paper, it does not look as bad as it feels.
Thank you for your time.
Please help.
Hello,
Welcome back to icliniq.com.
From your description, your condition appears to be an IC-BPS (interstitial cystitis-bladder pain syndrome).
In addition, you can do the following:
Take a full dose of Mirabegron (a beta-3 adrenoceptor agonist) 50 mg (milligrams) once daily, a capsule of Pentosan Polysulfate (low molecular weight heparins) 100 mg thrice daily, and a tablet of Amitriptyline (a tricyclic antidepressant) 10 mg once daily. All are to be taken for one month before changing the dose. Here, Mirabegron can cause some increase in BP (blood pressure), so check BP every week; Amitriptyline can cause some sedation; and Pentosan is relatively safe.
You can make a list of food items or drinks that cause flare-ups and try to avoid them or decrease their intake. On the internet, you can find a list of items to avoid in interstitial cystitis.
I suggest you consult your specialist doctor, discuss with him or her, and take the medicines with their consent.
I hope this information will help you.
Thank you.
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Answered byDr. Saurabh Subhash Pandya
Medically reviewed byiCliniq medical review team
Same symptoms don't mean you have the same problem. Consult a doctor now!
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