Thank you for the reply.
After a couple of years of consideration, I have concluded that under any circumstances avail myself of dialysis, which is, in my opinion, barbaric and only for those who fear death more than they fear a risk-plagued, anxiety-filled existence and terrible quality of life. The fistula alone is both traumatizing and almost barbaric and inhumane to me. My father agreed with this assessment of dialysis. I inherited my PKD from him. He died following transplant because he was given a damaged cadaver kidney. The transplant medication severely suppressed his immune system and led to infection, sepsis, cancer, and death. The only transplant I can receive is from a nonrelated donor that requires substantial immunosuppression that will harm me as badly as it harmed my father. Getting a transplant for me would be like trading kidney failure for diabetes and AIDS since the transplant medication destroys your immune system and causes diabetes. I was a nurse assistant in a renal transplant unit, so I know what I am talking about. Dialysis does not always extend life that far either. I have watched my patients (young patients) die following dialysis and transplant. I likely was just diagnosed with post-traumatic stress disorder (PTSD) subsequent to a psychiatric appointment today. This mental illness is partly due to my exposure to kidney treatments that did not work, and it also prevents me from pursuing these treatments. I am managing my disease through diet the best I can. In light of the fact that I have stage five kidney failure ESRD, for which I will not pursue transplant or dialysis, what is my prognosis roughly? I know it depends on my overall health and the remaining level of function, but I read that I should expect to die within two months to two years. Also, do you acknowledge that many people on dialysis cannot work anyway? I have sent you articles showing that over 75 percent of people are not working as they start dialysis, and this number remains the same after dialysis. In other words, dialysis usually doe not enable people to work.
I cannot afford most nephrologists and consider you my nephrologist, and I respect you and appreciate the help you are providing to me.