Patient's Query
Hi doctor,
My wife had been diagnosed with cavernomas since she was 15 due a to a gene defect. She had six seizures last week and was admitted to a ward. She was discharged later, only being told she had new cavernomas and the old ones had grown. She never saw a neurologist during her time there. However, today I have been informed she has one cavernoma in her right temporal region which has grown and there is one new one in her pons. I am very concerned about this as we have been offered no advice or anything about the dangers of this and only told we can ask questions when we get an outpatient's appointment which will probably be in a month's time. We are both very scared and concerned about for the prognosis. Can anyone help and give us some advice about cavernomas in the pons and the severity of this, it would be greatly appreciated.
Hello,
Welcome to icliniq.com. Regarding the cavernoma in her pons, it may lead to a low risk of bleeding. It does not cause seizures. The treatment with embolization could be a possible treatment option, but with a high risk because this is a life-threatening region of the brain. Regarding the temporal cavernoma, it is related to seizures. It can also lead to hemorrhage in this region. It can be treated with open surgery or endovascular embolization. Brain angiography is necessary to examine the anatomical features of the cavernoma before discussing treatment options. I recommend consulting with a neurosurgeon about these issues. Monitor blood pressure values and coagulation tests. Take brain magnetic resonance imaging (MRI) with Gadolinium enhancement every year.
Patient's Query
Hi doctor,
Thanks for the reply. So, provided she keeps in good health with blood pressure, etc., then a cavernoma in the pons is not something we should get too concerned with then? We have an appointment with a neurosurgeon. However, that will not be for a month or two. So, we just wanted to know some information in the meantime to ease our worries.
Hello,
Welcome back to icliniq.com. Pontine cavernomas are usually monitored with repeated magnetic resonance imaging (MRI) (wait and see) as their surgical treatment may impose a high risk for complications. While the temporal cavernoma which has been enlarged could be treated with surgery, as it is related to the uncontrolled seizures and may also lead to bleeding. You should discuss with the neurosurgeon on the above issues. If you have any other questions, please do not hesitate to ask me again.
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Answered byDr. Aida Abaz Quka
Medically reviewed byiCliniq medical review team
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