What is the best possible treatment for fibrous dysplasia?

Hello,

Welcome to icliniq.com.

I read your query and can understand your concern. As per your provided details, the prescription mentions fibrous dysplasia. The treatment of fibrous dysplasia depends on the stage of the disease. I will be needing an X-ray or MRI (magnetic resonance imaging) film to correctly comment upon whether you require surgery or not. Early stages do not require surgery, but later stages require the removal of the affected bone parts and fixation with an implant or bone grafting. Please upload recent X-ray films or MRI films so that I can guide you better. Hope this helps.

Thank you.

Hello,

Welcome back to icliniq.com.

I read your query and can understand your concern.

I have carefully studied all your X-ray and MRI films and the attached report (attachment removed to protect the patient's identity) as well.

As per the MRI report, your thigh bone (femur) has a large defect, which is most likely a tumor that is causing the destruction of the hard bone and replacing it with soft weak bone. At first view, it looks like fibrous dysplasia, a disease where hard bony bones get eaten up and replaced by soft fibrous threads-like structures. But for a confirmed diagnosis of such a grave disease, a bone biopsy is needed where a small part of your affected bone will be taken up and sent to a pathology laboratory where a histopathologist will confirm the diagnosis. There are many other tumors as well that look like fibrous dysplasia and have very different treatments than fibrous dysplasia.

I will be needing these details to discuss and guide you better:

1. What symptoms are you experiencing?

2. Since when are you experiencing these symptoms?

3. Is your walking affected?

4. Can you do your routine work?

5. Did anyone else on your father's or mother's side had any bone disease ever?

6. What kind of job do you do? Is it a sitting or traveling job?

Please reply with answers to these so that I can plan what is best for you.

Hope this helps.

Thanks and take care.

Hello,

Welcome back to icliniq.com.

I read your query and can understand your concern.

With the details that you provided, I would suggest the following:

1. Get a bone scan or PET (positron emission tomography) scan whichever is possible.

2. Your bones have become too thin and you can get fractures easily even while turning sideways on the bed or even on climbing stairs. Be cautious.

3. You should undergo surgery as soon as possible where these things will be done:

(a) Taking a biopsy of the affected bone to confirm the diagnosis.

(b) Fixing an implant (a rod, nail, or a plate) which will strengthen your bone to avoid any fractures in the future.

(c) Filling the defect in your bone by bone graft (taking bone from different parts of your body usually the hip and filling it into the defect).

4. If the biopsy report says benign, then nothing to worry this tumor is not spreading. But if it says malignant then you may need chemotherapy and radiation as well.

A bone scan or PET scan can help us to know if this tumor is malignant, where all other places have it spread even before surgery.

As your bone is more than 50 % damaged (compared to another side) the time for waiting and watching is gone.

Hope this helps.

Thank you and take care.