I was diagnosed seven years ago with Hashimoto's thyroiditis. I gave up gluten, soy, and milk, and along with Levothyroxine, my health has been great. However, two years ago, I was diagnosed with vitamin D deficiency. After six months of treatment, I recovered. Then after having a second baby last year, I started having strange symptoms.
My symptoms included;
1. Numb spots on my legs.
2. Electric shock sensations between my legs.
3. Cramps in my calves and ankles.
I was very tired, but I was also up all night with a new baby. So, I do not know if that is a symptom or not. Then early this year, I went for my yearly physical. It showed that my TSH was high. Apparently, after my son was born, they put my medication too low (normally, I take 100 mcg, but they put me down to 75 mcg a day). I took this amount for four months. I then started taking 100 mcg a day again.
A few weeks later, I developed chronic pain all over. This included cramps, burning, stinging sensations, and electric shocks. The first doctor thought it was just hormonal and said it would go away. After about three months, I finally saw an endocrinologist. He did a thyroid panel, and everything was normal. So, he referred me to an internal medicine doctor. The internal medicine doctor thought it might be an 'active b12' deficiency. They do not have the 'active b12' test where I live. So my doctor decided to treat me as if I had a b12 deficiency. So after taking some oral supplements, I was started on weekly injections for four weeks. My startup symptoms were rough; basically, I felt much worse - more electric shock sensations, joints popping, etc. Then I began to feel better. Then after my fourth injection, I was pain-free and feeling great.
However, this only lasted about four or five weeks. Then the pain came back. My doctor then recommended one shot every day for six days, then weekly shots for six weeks. The week I was having a shot every day, I began to feel better again (though not quite pain-free). Once that was finished, and I started with weekly shots, it was more up and down. I began to notice a pattern. After each shot (Friday), I would feel a little worse, but then by Wednesday, I would feel better (but not pain-free). After six weeks, I was pain-free but only for about five days. Then the pain came back, and now I feel worse. I was negative for intrinsic factor (although I have read false negatives happen 50 % of the time). And as I stated before, all my serum levels are normal. But I responded to the b12 therapy really well initially. Can you help me? I feel like my doctor is close to giving up on me.