Hi doctor,
I have been suffering from a variety of symptoms that is becoming worse for more than 10 years, and I have spent a majority of the past eight months in hospital. Various diagnoses have been put forward within the last six months, all of which have eventually been discarded. I have undergone many tests, most of which uncover abnormalities within function the organ that is being tested, but do not identify the cause. I am on a number of medications and have also been receiving psychological treatment with no improvement. I do not suffer from any mental health conditions, as confirmed by multiple psychiatrists. We are yet to see a neurologist. My family and I have been doing some research, and have come to the conclusion that a majority of my symptoms could possibly be explained neurologically. I recently underwent an MRI scan, which uncovered a 1 cm pineal cyst. This most likely provides an good explanation for some of my symptoms, the others do not seem to be related. We have been in contact with a neurosurgeon for the removal of the cyst. A large portion of my 'other' symptoms do seem to match conditions such as autonomic neuropathy or dysautonomia. Do you think that my symptoms fit those of a neurological condition(s)? If so, which one(s)? I do have a family history of Multiple sclerosis, brain cancer and dementia.
I have difficulties remembering, concentrating and cognitive functioning. I am sensitive to sound and light, have poor eyesight and visual disturbances like double vision and trouble focusing. I have tingling, burning or numb feeling in many parts of my body, usually on one side. I also have muscle jerking, twitching, pain and cramping. I have a sensitive skin and recurrent mouth and throat ulcers. I have had constant headaches that is usually felt behind the eyes. When it worsens, it is accompanied by dull nausea. i have had roughly four to five migraines per week, which usually lasts two to ten hours. Its onset is usually at night or early morning. I am easily fatigued and have menstrual issues like heavy bleeding and pain. I also face insomnia and other sleep issues. I have frequent infections and slow wound healing. I have multiple joint issues like juvenile spinal osteochondrosis and scoliosis, along with lax joints, which cause frequent fractures or dislocations. I have an internal and external snapping hip (for which a surgery is pending) and Carpal tunnel syndrome. I also have symptoms that appear to be attributed to autonomic neuropathy. I have stomach and intestine problems like constipation, diarrhea, early satiety, nausea after eating, problems swallowing food, swollen abdomen, and vomiting. Currently, I am almost solely fed through a nasogastric tube. The symptoms related to my hearty and lungs include abnormal heart rate, blood pressure that changes with position, fainting, shortness of breath, etc. I find it difficult to initiate urination, which requires intermittent catheterization. I also have leaking urine and a feeling of incomplete bladder emptying. I sweat too much or too little, have temperature instability and heat intolerance. I am also intolerant to exercise and have vaginal dryness. I have unexplained weight loss and a small pupil in one eye. My medications include:
-
Isotretinoin 20 mg (APO-Isotretinoin Capsules) one tablet nocte
-
Cyproheptadine hydrochloride 4 mg (Periactin Tablets) one tablet ds
-
Propranolol hydrochloride 10 mg (APO-Propranolol Tablets) two tablets bd
-
Carnitine 500 mg (Acetyl L Carnitine Capsules) three capsules bd
-
Zinc sulphate 50 mg (Zincaps capsules) one capsule daily for one week, then two capsules daily for one week, repeat Multivitamin (Tablets) one tablet daily
-
Sucralfate 1 g (Carafare Tablets) One tablet bd Ubidecarenone 150 mg (CoQ10 100 mg Capsule) One capsule bd
-
Ranitidine hydrochloride 150 mg (blister) (Ranoxyl (Tablets) One tablet bd
-
Omeprazole 20 mg (APO-Omeprazole Capsules) One capsule bd
-
Melatonin 3 mg (Melatonin Tablets) one tablet notce
-
Amitriptyline Alphaphram 25 mg (Tablets) one tablet nocte
-
Sandomigran 0.5 mg (Tablets) one tablet nocte
-
Paracetamol 500 mg (Acetaminophen Tablets) one tablet tds
-
Tramadol 50 mg (Capsules): one to two caps every three hours as needed
-
Oxycodone 5 mg (Tablets): one to two tablets every four hours as needed
-
Ondansetron 8 mg (blister (Wafers): one to two tablets every six hours as needed
Thank you very much for taking the time to read. I hope to hear from you soon. Thank you.