Patient's Query
Hi doctor,
I have been suffering from a variety of symptoms that have been worsening for more than 10 years, and I have spent the majority of the past eight months in the hospital. Various diagnoses have been put forward within the last six months, all of which have eventually been discarded. I have undergone many tests, most of which uncover abnormalities within the function of the organ that is being tested, but do not identify the cause.
I am on a number of medications and have also been receiving psychological treatment with no improvement. I do not suffer from any mental health conditions, as confirmed by multiple psychiatrists. We are yet to see a neurologist. My family and I have been doing some research, and have come to the conclusion that a majority of my symptoms could possibly be explained neurologically.
I recently underwent an MRI scan, which uncovered a 0.39-inch pineal cyst. This most likely provides a good explanation for some of my symptoms; the others do not seem to be related. We have been in contact with a neurosurgeon for the removal of the cyst. A large portion of my 'other' symptoms do seem to match conditions such as autonomic neuropathy or dysautonomia. Do you think that my symptoms fit those of a neurological condition(s)? If so, which one(s)? I do have a family history of Multiple sclerosis, brain cancer, and dementia.
I have difficulties remembering, concentrating, and cognitive functioning. I am sensitive to sound and light, have poor eyesight, and visual disturbances like double vision and trouble focusing. I have tingling, burning, or numb feelings in many parts of my body, usually on one side. I also have muscle jerking, twitching, pain, and cramping.
I have sensitive skin and recurrent mouth and throat ulcers. I have had constant headaches that are usually felt behind the eyes. When it worsens, it is accompanied by dull nausea. I have had roughly four to five migraines per week, which usually last two to ten hours. Its onset is usually at night or early morning. I am easily fatigued and have menstrual issues like heavy bleeding and pain.
I also face insomnia and other sleep issues. I have frequent infections and slow wound healing. I have multiple joint issues, like juvenile spinal osteochondrosis and scoliosis, along with lax joints, which cause frequent fractures or dislocations. I have an internal and external snapping hip (for which a surgery is pending) and Carpal tunnel syndrome. I also have symptoms that appear to be attributed to autonomic neuropathy.
I have stomach and intestine problems like constipation, diarrhea, early satiety, nausea after eating, problems swallowing food, swollen abdomen, and vomiting. Currently, I am almost solely fed through a nasogastric tube. The symptoms related to my heart and lungs include abnormal heart rate, blood pressure that changes with position, fainting, shortness of breath, etc.
I find it difficult to initiate urination, which requires intermittent catheterization. I also have leaking urine and a feeling of incomplete bladder emptying. I sweat too much or too little, have temperature instability, and heat intolerance. I am also intolerant to exercise and have vaginal dryness. I have unexplained weight loss and a small pupil in one eye. My medications include:
Isotretinoin 20 mg (APO-Isotretinoin capsules) one tablet once.
Cyproheptadine hydrochloride 4 mg (Periactin tablets) one tablet ds.
Propranolol hydrochloride 10 mg (APO-Propranolol tablets) two tablets bd.
Carnitine 500 mg (Acetyl L Carnitine capsules), three capsules bd.
Zinc sulfate 50 mg (Zincaps capsules), one capsule daily for one week, then two capsules daily for one week, repeat.
Multivitamin (tablets), one tablet daily.
Sucralfate 1 g (Carafare tablets), one tablet bd. Ubidecarenone 150 mg (CoQ10 100 mg capsule) one capsule bd.
Ranitidine hydrochloride 150 mg (blister) (Ranoxyl (tablets) one tablet bd.
Omeprazole 20 mg (APO-Omeprazole capsules) one capsule bd.
Melatonin 3 mg (Melatonin tablets), one tablet once.
Amitriptyline Alphapharm 25 mg (tablets): One tablet once.
Sandomigran 0.5 mg (tablets) one tablet once.
Paracetamol 500 mg (Acetaminophen tablets) one tablet tds.
Tramadol 50 mg (capsules): One to two caps every three hours as needed.
Oxycodone 5 mg (tablets): One to two tablets every four hours as needed.
Ondansetron 8 mg: One to two tablets every six hours as needed.
Thank you very much for taking the time to read. I hope to hear from you soon.
Thank you.
Hi,
Welcome to icliniq.com.
I understand your concern.
Can you possibly upload MRI (magnetic resonance imaging) images and other reports, including ophthalmic evaluation, hormonal profile, and electrolytes profile? Your list of symptoms is fairly large and does not appear to be related to a simple pineal cyst (sometimes it is only an incidental finding on the MRI).
Other musculoskeletal reports (of the hip joint, wrist joint, and spine) will help in reaching some conclusions. All pineal tumors may not need surgery, but it is difficult to comment without an MRI image.
I hope this information will help you.
Please revert in case of further queries.
Thank you.
The Probable causes
Was this conversation helpful?
Answered byDr. Ambekar Sudheer
Medically reviewed byiCliniq medical review team
Same symptoms don't mean you have the same problem. Consult a doctor now!
Related Questions
Cognitive Deficits in Long-Term Users of Cannabis
Central Precocious Puberty: Types, Causes, Symptoms, Diagnosis, and Treatment
An Overview of Elective and Nonelective Surgeries
Endoscopic Carpal Tunnel Release Surgery - Indications, Advantages, Procedure, Recovery, and Side Effects
Understanding Myxoid Glioneuronal tumor: Diagnosis and Treatment
Physiology of Precocious Puberty
Disclaimer: No content published on this website is intended to be a substitute for professional medical diagnosis, advice or treatment by a trained physician. Seek advice from your physician or other qualified healthcare providers with questions you may have regarding your symptoms and medical condition for a complete medical diagnosis. Do not delay or disregard seeking professional medical advice because of something you have read on this website. Read our Editorial Process to know how we create content for health articles and queries.