I have been diagnosed with cervical dystonia, a chronic neck disorder for most of my adult life. It is extremely debilitating and treatment resistant. The onset was after car accidents, stress and substance abuse at age from 19 to 21. I am no longer smoke or drink and have stopped before 10 years. I have seen the top neurologists in my country, taken all the drugs and Botox variants and even considered deep brain stimulation. All scans and blood tests have come back with nothing. I also have vague symptoms that my neurologists dismissed out of hand or had no clue about and said as much. The first symptom is a discoloration of the skin from the base of my skull, which runs halfway down my back. It is a pale yellow brown hue, more noticeable in natural light. Aside from my neck spasms, this is the only visual, physical symptom I have, apart from persistent acne on the back.
The second symptom I have, which happens once or twice in a year, although less frequently in the last few years, is a feeling at night. It feels like I am going to experience some kind of organ failure in my middle back. This is coupled with breaking out in a cold sweat. I can only describe it as feeling like I am on the verge of dying. It is not a pleasant sensation. I also experience depression and anxiety and an odd lack of pain in most of my body. This lack of pain numbs the excruciating spasms in my neck, but also hinders healing and sensations throughout my body. With all this in mind, my question is, are there any tests the neurologists might have missed that an endocrinologist would usually employ? Does my symptoms sound worthy of further investigation by an endocrinologist?
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