Hello doctor,
I am a 29-year-old female. I am an occasional drinker and social smoker (pack a week). Until the last 4 years, I jumped from career to career due to the inability to perform duties. No prior surgeries or diagnoses other than EDS (idiopathic hypersomnia) at the age of 23. I take multi gummy (zinc, calcium, and magnesium) supplement and 15 mg Adderall a day.
I had at home sleep study, four inpatient sleep studies, including two daytime latency tests. Both inpatient studies showed restless sleep with prolonged REM dream stages. I took less than six minutes to fall asleep each time on average and woke without memory approximately 40 times in six hours. Sleepwalking consistently happens until the age of 15. All bloodwork are normal. No history of high blood pressure.
I took one MRI with and without contrast three years ago, and x-rays of neck and spine recently without abnormal findings. Physical therapist refused to treat due to fear of disability. I underwent behavioral therapy and psychiatrist determined unnecessary. History of cancer and tumors of all types on both paternal and maternal sides. I consult GP and pulmonary/sleep lab regularly.
My symptoms are as follows:
Frequent urination with incontinence, nausea with vomiting occasionally most often in the morning or before bed, vertigo/dizziness double vision with flashes and spots, tingling and numbness of hands, arms, and feet sometimes calves. Long lasting migraines behind the right eye, neck spasms/constant pain with stiff neck that is sudden and sometimes long lasting. I had those since young age but progressively gotten more painful and recurring. It starts hot at the base of the neck and travels to the forehead and tongue. I have a lack of focus and concentration with brain fog. I have slurred speech, unable to type or write or read frequently. Previously, I had fantastic photographic memory, but now I have severe forgetfulness, loss of balance in walking or jumping, and tripping. Inability to move and walk dead limbs, pigeon-toed, frequent night terrors, loss of appetite, unexplained weight loss and gain. I have rapid mood changes without cause (irritability), hallucinations, and hearing things that are not there.
Soreness and stiff hands, fingers, and wrists, scratching sound in the right ear with pressure, chest pain without high blood pressure, pressure behind right eye sensitivity to light.
Spider crawling sensations on the scalp and base of the neck at night, mood swings, and severe sadness outbursts of tears for no reason. Detachment from reality and feeling unaware of what is going on (confusion), mouth and face, lip, eyebrow twitching mostly on the right side. Discomfort in feet and legs while sitting or lying down, unable to sit with feet crossed for more than a minute. Weird ammonia chemical-like taste and smell, cannot taste eating or drinking. I am currently on Provigil and Ritalin.