My niece is 4 years old now. A year back we realized that she was not catching up how to speak and consulted an ENT doctor. Doctor performed few tests like BERA, OAE and hearing assessment. Then he confirmed that my niece is suffering from profound hearing loss. Doctor suggested hearing aids could help her in listening temporarily but advised cochlear implant as permanent solution. Though my niece grabbed very few words to speak with the help of hearing aids, she could not completely mingle with us. We still neither could digest the news nor can imagine that she wearing external devices for her entire life. Also that none of us or our ancestors had such problem.
We consulted few more doctors for further confirmation and I browsed over the internet but everyone says cochlear implant is the only solution. We would like to take a final opinion from the doctors around the world before she goes under the surgery and hence drafting this. Can we have a hope that the problem could be different and doctor identifies the actual problem (if any) while operating the ear for cochlear implant? I figured out from few blogs that research is going on few devices which do not require wearing external device. Can you please let me know if they are available outside? If not, how many yet more years to pass to get those devices into the world and save many children with this problem? I have attached the BERA, OAE and hearing assessment reports for your reference. Please have a look at them and advice. Thank you very much for your valuable time and your help is definitely admirable and cannot be unnoticed.
Welcome to icliniq.com.
Reports (attachment removed to protect patient identity) clearly explains about the problems. I clearly understand your concern and worries.
CT and MRI scan for cochlear implant.Treatment plan:
1. Speech therapy after cochlear implant, minimum three days in a week, only by speech language pathologist.
2. Regular mapping by an audiologist.
For further information consult an audiologist online.---> https://www.icliniq.com/ask-a-doctor-online/audiologist
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